Last night at dinner was a bit of a momentous occasion for me. I took, what I hope to be, my last ever oral pill for the MS.
My little blue pill which has been part of my life, twice a day for the past seven years, is now a thing of the past. This is it. The real countdown has now begun. it didn't seem so real before now. Yes, I have been trying to be careful with my food and the 'pregnancy' diet to avoid getting listeria. I have been attempting to keep everything around me sanitised to the point of OCD (which I am very far from).
This little pill is the reality starting to kick in for me now. I don't know how long it will take to leave my system, or how I am going to be after not having it for a couple of days. But it's gone. It has been such an intrinsic part of my world, and a natural one, it feels strange not having to make sure I take it with dinner or breakfast. Or having to have protein with it. It feels liberating! Who knew!?
So 11 days left before i lose my immune system for a while. I have been reading up on the lymphocyte count and the difference between B and T cells tonight. It's all rather scientific, which my brain doesn't do well. My current count according to my last blood test was 1.9 (where the normal range is between 1.1 - 3.6). With the Lemtrada treatment this can drop as low 0.25. So the immune system - severely compromised. Contracting a simple common cold has the potential to be devastating for me. All I ask, if you want to visit, please don't bring any bugs with you. Tony has been told if he gets sick from being at work, he will need to stay somewhere else until he is fully recovered.
It will take about a month for my count to be back within a marginally safe range. But like M.S., this is different person to person.
Wish me luck! I may share some of the side effects I've been reading about next 😏😆
Take it easy.
J
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