Wednesday, April 19, 2017

I swear I'm not drunk

I've been lucky. Up to now that is. My little MS monster has decided it's had enough of keeping quiet and just hanging around in the background. No, it's had enough of being ignored. A little while ago, my monster decided to show it's ugly little head (or not so little anymore) and slap me around a bit.
To be fair, I had been ignoring him pretty significantly. My stress levels had risen pretty high, from work and moving house and a couple of other things. I had taken advantage of the monster silence and medication-aided alertness to the point of not getting enough sleep, or at least going to bed at a decent hour.
So a couple of Thursday's ago, I woke up with dead legs. That heavy feeling hit my head and heart. My legs felt like I had been sleeping on them all night. If you can imagine when you sit on your legs and they go to sleep, that's what it was. But it was the whole leg and both. I took the day off, as usually when these attacks have happened in the past, they have not lasted too long. My legs managed to be okay for the next day, although walking was slow, and I went to work. Saturday, again wasn't too bad, nor was Sunday. Monday I woke a little worse, but decided it would be a good idea to try and go to work. I had an important day ahead and didn't want to miss it. A day on the floor with one of our operations teams, so it also meant I would be on my feet. What a crazy idea that was.
I was stumbling around, losing my shoes and didn't actually realise my shoe had left my foot. I understand the drunk references in MS so much more now. It's given me a better appreciation of the disease and all it brings, and just how lucky I have been.
Nearly three weeks on, and I'm still coming to terms with it. My mobility has improved, but the balance is still off kilter. I've forced myself to listen to my body for the first time in a long time. I've also managed to do a canal boat trip with family which has been a saving grace. Enforced rest, some sunshine and nothing more stressful than deciding where to stop for the night or what to have for dinner. It's been a learning curve, but one I plan to actually take note of and to make sure I follow the rules in future. And whether or not I get my legs back to 100% or only some of it, it is what it is. I can't get down or feel bad when I have the support and love of some of the most amazing people in the world. I am still lucky.